Gülay'ın Yaşamı (ws)

18 yaşında williams sendromlu bir cocuğum var. Doğdugunda ki ilk belirtileri. dudak üstlerinde morarma, şiddetli gaz şikayeti vardı. 3 aylık olduğunda cerrahpaşa tıp fakültesinde kardeoloji bölümünde yapılan araştırmalar sonucunda periferik pulmoner stenos (damarlarda darlık) tanısı konuldu, bununla birlikte göbek fıtığı olduğuda belirtildi.Ufak bir operasyonla tedavisi yapıldı fakat w.s olduğunu belirtmediler.

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Williams Sendromu İçin Elele Yürüyüşü

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